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Archive for the ‘mother’ Category

So not to put you to sleep within the first paragraph, I am going to refrain from delving too awfully deep into the history of my son’s battle with (what I have always thought was) Aspergers High Spectrum Disorder.

I have always had behavioral, health, mental and cognitive problems with my poor sweet boy.  However, just anyone off the street would look at him, listen to him speak and see him as perfectly healthy and normal with maybe a few “quirks”.

I have struggled for years to find the answer to his sudden, unexplained rages. His dibilitating headaches.  His learning and memory problems have become worse in the past few years.  He has never been able to ride a bicycle or tie his shoes, but he can complete a video game made for adults in a matter of a few days.

I digress.

I quite my job to stay home with both children.  My new mission became to have Owen diagnosed with Aspergers (the only thing at that time that seemed to “Fit” his vast array of problems), so we could start receiving some sort of disability.   The same week my mother was put into the hospital, Owen was grudgingly diagnosed by a psychologist with Autism Spectrum disorder, depression, OCD and possible bipolar.  We got our first check for SSI on moms two month (death) anniversary.

I’m trying to get to the point.. sorry…

Last Sunday, while trying to coax my son away from his computer long enough to play a round of Pugopoly, he burst into tears and started telling me how depressed he is.  He stated his head hurts all the time, he feels exhausted, he can’t wake up… I knew all these things, because it has been a daily conversation for over a year now.

What WAS new to me was the feelings that he just wanted to “die” because he is so tired of hurting all the time.

Crushed me! He is only 9!

I quickly googled “child psychologists in my area and found one, emailed him and received a reply back within an hour.  I took him for his first visit on Thursday, my son’s 10th birthday.

What this Doctor did, was nothing like I expected.  He first of all stated that I may hate him for what he was about to tell me, I may call him a “quack” and wish to leave, but to please hear him out.  He then interviewed me about Owens past history, asked Owen a few questions, watched him carefully for approximately 15 minutes all together…. and then sat back in his chair and simply stated:

 “I don’t think for one second, that this child has Aspergers!”

He then proceeded to guide me down a path of new ways of thinking, different ideas and completely new possible explanations for my sons strange ways.

Auditory Sensory Disorder

Temporal Lobe Epilepsy

He gave me these explanations, told me to go “look them up” read about them and give him a call back with my thoughts.

Totally aghast, lost and a little excited… i did just that.

The Auditory Sensory Disorder sounded a little like Owen.  The Temporal Lobe Epilepsy sounded a little more like him.. but neither one matched up with his rages, mood swings, memory loss and decline in school function and fatigue.

Then, I swear to GOD, my mother guided my eyes to this one sentence:

Some children with HH have significant difficulties controlling angry outbursts, aggressive tendencies and are diagnosed with “hypothalamic rages.” These rages often can be mistaken for “temper tantrums;” however, they usually happen quickly and without an identifiable cause or provocation. 

There it was!!! Something I could identify with… I kept reading.  It sounded like my son… it sounds exactly like him, Word For Word! It IS MY SON!! What is this?!?! What does he have?! This is IT!!!! I FOUND IT!

Hypothalamic Hamartoma

hypothalamic hamartoma (HH) is a rare benign brain tumor or lesion of the hypothalamus. Thehypothalamus is located at the base of the brain, and is responsible for many of the “automatic” functions of the brain including hunger, thirst, temperature, passion, and hormone regulation. A hypothalamic hamartoma can cause many types of seizures, precocious (premature) puberty, cognitive deterioration and severe behavioral difficulties known as rage behaviors.

Here is the link if you wish to read more on this:  http://www.epilepsyfoundation.org/aboutepilepsy/syndromes/hypothalamichamartoma/index.cfm

A tumor?!!

Oh God! What do I do with this new information?! How do I process this and keep this calm and quiet over the holidays?

I know it sounds exactly like him… but what if I put him through more testing just to find out I am once again WRONG. Did my mother show me this because she knows how much it means for us to figure this out?!

So, while I process this new information, prepare for the Christmas my family expects and start a New Year without my mom… I will pray, research and welcome ANY feedback any of you have for me!

I am at a loss!

Merry Christmas!

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imagesCA4V39REI am back to talking to my mom again.

I had a very good session with the counselor on Thursday, from which a new outlook and the taking back of some power in my personal life, has since occurred.  With these feelings of peace and strength, also came a truce of sorts with my mother.  I am not sure how long this period will last, if it will just be a few days or from now on, I can’t predict yet.  I do know I am a little more at peace and a whole lot less depressed.  So that is a VERY good thing.

This morning while doing dishes (one of those mindless tasks that always seems to invoke a thread of words that I feel must be IMEDIATLY written down, thus resulting in no more housework and hours of me sitting at the computer), I had an epiphany of sorts:

My mother lost her mother to cancer around 23 years ago.  I was 15 when this happened.  I remember her being extremely emotional and upset, crying and hiding in the bathroom for hours, disowning me for being late home from ballet class, lashing out and yelling at us all.  I remained fairly detached during this time.  I was not very close with my Grandmother, after all, I remember she had been quite mean to my mother, and she really just made it difficult to ever get very close to her.  I continued to be my mom’s “good girl” but I do know I was not the “comforter” my mother needed at that time.  I was only 15.  I remember my Aunt calling me “strong” and “just who Mom needed to get through this”, but I really do not remember doing much different from how I always had been, maybe a few more hugs and a little more obedient?

My grandmother was, what I have now since learned, the epitome of the Co-Dependant parent.  She was the main reason my mother became the person she became, the mother she became.  My poor mother had no chance of ever being a different kind of mother.  Things like “co-dependant parents”, “depression”, “verbal abuse”, etc… were not discussed or even diagnosed in the 1950’s.  She only knew to raise us girls the same way she had been raised.. with an iron will and a ready belt.  Guilt and shaming were the only words she knew.  Conditions, the conditional love… all learned from my grandmother, who probably learned it from her own mother.

So, I feel I owe my mother an apology, of sorts.  I need to release this anger I have towards how she raised me.  I know she loved me, I know she did some very wrong and unfair things to me…. said some very mean things, did some things that nowadays would be considered  “abusive”,  and YES I still have a right to  be angry for those things,  but she also did some very good things, some very loving things, and she did the very best she knew how.. It may have taken her a good 30 plus years to get there,  and it may have taken me fighting every step of the way,  but she was learning to trust me and allowing me to take back some control, however small, she was giving in… a little.   Part of it may have been that she knew she was not long for this earth.  I know she was trying to prepare me.  I don’t know if she realized just HOW hard it would be on me, but she was worried.

I don’t think for a second she would have ever taken responsibility for her actions and words against me all those years, but I do think she understood that some of the mistakes she had made were very bad, and that I was being very kind to just “let them go” the way I had.

I feel like, for now, I can release some of this anger and just allow myself to miss her and at LEAST make it through Christmas and New Years without blowing my brain out with the loaded “anger gun” I have been waving around.  I hope.

I still feel like a scared little 4 year old girl that has lost her mommy… I’m just not soooo mad and accusing her every minute, thats a start…. thats a start.

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Mom, doing something nice :)

Mom, doing something nice 🙂

 

It’s hard to belive it has been 2 months now since momma passed.

I have been so busy just trying to muddle through the day-by-day… I have let the time slip by.

I went to a Christmas program with my boss Saturday night.  I thought it would be awful, but it was really pretty pleasent, for the most part anyways.  It was very hard to sit through the show without thinking “Mom would have loved this!” or “Oh, mom’s favorite song!”

I did even tear up a time or two with the sadness that mom would have really enjoyed that music so much more than I was.

I allowed myself to miss her for the rest of the evening.

I think I have been sooooo very busy being angry with her, I have not been allowing myself the time to remember, grieve and actually MISS her.

For everything bad I say about her, I can now say a good thing just as fast.  And you know, she really was a good person in so many ways.  She tried so very hard to create a perfect, christian world for us.  I think her human side, her mental state, just did not ever allow her to be “happy” with her results.  I think she might have been just as hard on herself, on the inside, as she was on us.

Today I am going to “TRY” (big emphasis on the word “try”) to put up Christmas decorations and the tree.  I am going to try to get through December the best I can.  Then maybe I can look forward to kissing 2013’s Ass… GOODBYE!

This has been one Hell of an awful year.  I’m just going to try.. that’s all I can do, right?

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I’m feeling quite shaky, a little panicked and a whole lot anxious today.

I’m not sure if it is the copious amounts of coffee I have indulged in this chilly morning, or the fact that I bared my soul for over 2 hours yesterday.  I figure it’s the latter.

The new counselor seems very nice, exactly who I need in my life right now…  BUT… It is still a very difficult, painful thing to sit there and run a dry-eyed monologue about every terrible thing that has happened over the past 39 years.  A diatribe of “poor me’s” falling out of my mouth like rocks.  I found myself uncovering fragments… exposing just a few seconds of the pain just to quickly cover it back up.  Scuffing dirt over it with my foot, as if too long exposure to the air would somehow start to drag me back under my personal ocean of emotions.

She wanted to go back to the very beginning.

She wanted to know everything in just a few minutes.

Each crucial moment, each pivotal second of my life came out in a rush of non-emotion.

“Yes, I was abused and manipulated as a small child… next.”

“Yes, I was bullied by classmates, teachers, mother, sister, grandmother…Next”

“Yes a boy I was secretly friends with killed himself after I had refused to talk to him in the library when he asked for help…NEXT”

“Yes I married my husband to get away from my mother… NEXT”

“Yes, my dad blamed me for my daughters mental illness, stating I was “TOO SINGLE” to raise her properly… Next…

“Yes, I aborted a baby because my mother told me I had to, Yes my son is special needs and drains me dry every single day… Yes, my mother died and I miss her, Yes, My mother died and I hate her for leaving me….Next, Next, Next!!!!”

Every door, every single cupboard of my life left hanging open, exposed to my internal light and judgement.

She did try to close some of the doors before I left.  She also seems like she will help me to close all these doors after time… but as for now, they are still ajar.  Dinging and alarming like an obnoxious car door.  “Your Door is Ajar” is the constant mechanical voice in my head… reminding me that I am still wide open.  The cold air rushing in and making the cobwebs and spiders, that were once still and unmoving,  wave and sway in the breeze.

I went grocery shopping after I left her office.  Probably NOT the best idea.  Walking around I kept feeling like maybe I had a scarlet letter on my chest.  Maybe a “C” for Crazy… or just a “W” for Wounded…. I still felt like everyone around me could smell my sorrow, my damage.. maybe like smelling slightly rotted meat or even just garlic, obvious enough to smell it, but not quite sure if it’s pleasant or offensive.

I felt very anxious, very stressed, quickly finished my shopping and rushed home to my safe little haven.

Now I am shaking and nervous, weepy and exposed.  I am curious if I will feel this way every single Friday?  Will THIS be my new normal? I usually stamp these feelings down and cover them.. now they are growing and fighting their way around these doors, and I am supposed to let them.   The bind weeds of my emotions got a taste of the light yesterday, now to see which direction they choose to crawl, Back to the darkness… or towards the light.

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I knew it was sitting there.

I could feel its weight pressing down on my brain. I could feel it as if it were fire.  I was not touching it, but I could still sense the weight of it in my purse.  There was a little over $4 thousand dollars, right there in my purse.  Blood money, free money, will money, payment for 39 years of being moms “perfect child”, her “sweet baby”.

The stress is getting worse.  The kids are compounding everything I feel.  Just like a crushed tomato tied back together with string, I still ooz and bleed with every touch, jab, word. Ready to fall apart, easier than before.

The weight of depression, hopelessness, growing faster than a storm cloud in my mind. “Why can’t we just have one day of peace? Why can’t I have just a moment to think? Why can’t we just spend a day together without the fighting, the anger, the competition for my affections and favoritism?”

I am exhausted. Just thinking of a simple task like cleaning house or making the bed seem to weigh 500 pounds on my bruised brain.  I want to hide. I want to run away and hide.

The money, it’s right there.  It’s ready to burn my hand the moment I touch it.  I’m supposed to use it for bills, Christmas.. the kids, not me… not for myself, the kids.  Don’t touch it.

I slowly pull myself up in the bed.  I glance at the alarm clock, 2:30p.m.  I had fallen here just moments ago.  My bed a rescue raft, floating in my room for me to grab onto and wail into my pillows until the hopelessness and suicidal thoughts pass on by.  My raft is still shaking, threatening to sink.  I’m screaming inside, “It’s not going to get better! It is NEVER going to get any better!”   The kids will never get “well”.  Neither one has any illness that can be cured.  I will just be stuck in this life for the remainder of mine.  The same violence, the same temper tantrums, the same emotional drainage of mom day after day.  It. Will. Never. Get. Better….

I slowly drag my aching heavy limbs out of the bed and start pulling on clothes.  The argument that had just occurred between my children and I still ravaging my brain like it’s on repeat. The same depressing mantra on repeat:  “Its happened before, it will happen again, again, again, it will happen again.”

I look around the house. It’s a disaster. You would think that my teenage daughter, seeing her mother is drowning, would at least help with the housework.  I start pulling together dirty clothes, I make separate piles of colors and observe how they look like piles of dead leaves.  I will do the laundry, I can at least do that.

I quickly start to come out of the fog, suddenly I’m on fast forward.  Laundry, sweeping, dishes, clutter… each task tackled in a mindless rush. I can at least get these things done. I can at least leave a clean house.

The kids are in the background, sighing, stomping, slamming, sniffling… each, in their own passive aggressive way, are driving the nails into my back.  “You deserted me!”  “You took her side”, “you took his side”, “It’s not my fault!” “It’s all his fault/Her fault/YOUR fault!!” Each silent accusation a dart going into my skin. I ignore each dart with a disinterest, a tear slipping out silently instead.  “Don’t treat me like that”, I cry inside.  “I’m the one that loves you more than life!” “I’m the only one that understands you, but I’m tired!! Don’t yell at me, don’t hurt me! It hurts to be used like an emotional punching bag” “it hurts, It hurts, I HURT!!!”

Instead, I just keep cleaning, tears running down my face.  I want to run and hide, back onto my raft, back into my cave, I want to cling to the safety of the bed and hide. I keep doing the dishes.  I look out the window into the backyard.  Birds, a dog, a squirrel… things that usually make me smile instead make me feel the exhaustion of my own inner darkness.  There is such an anger in being depressed, like, how dare the sun shine when I feel such pain? Does it not care that I can only feel, can only see darkness?

Dishes, concentrate on the dishes.  Concentrate on the work.  Feed the bird, feed the dog, mop the floor, change out the laundry, feel the weight of the money in my mind, count it.. weigh it… smell it.. finish the dishes.  Finish the Dishes.

Freedom is in the weight of that money.  Freedom from everything weighing me down in this house, in this life.  It will never get better, so why stick around?  Why should I stay here and watch it all fall apart?  Why should I be the one to always have to fix, mend, tape, glue, wipe, heal… Why should I be the abused one? I can’t think, I can’t heal, I am supposed to be “momma’s STRONG girl” but my strength was obviously buried along with my mother.  It’s holding her hand in the cold darkness, it is certainly not holding my hand as I struggle to stay afloat.

I finish the dishes, I continue to stand at the sink, the moment has come.  The moment that entered my thoughts as soon as the money hit my hands.  Turn around, walk out the door, fill up the car and just go… just GO…. Walk out the door… WALK OUT THE DOOR…

I can’t seem to move.  Whats the problem?!?! Why am I not doing what I should, what I want, What I know will keep my children safe.  I am the problem, I am the reason their life is so chaotic and horrible.. I should leave, let them move on, let someone more stable and healthy deal with their needs.. I Should Just Leave.

I slowly turn around, away from the sink, away from my old life, away from the accusations and the pain. I turn, I turn away and find myself looking at the alarm clock, the alarm clock beside my bed… 2:35 p.m.

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I awoke this morning with complete control and determination.  I laid in bed, unmoving and slowly, brick by brick, built a wall around myself so strong, so impervious, that no amount of “this time last year” or “what if she was still here” would ever break through.  After 2 hours of Macy Day parade watching and distracted Tumblr scanning I suddenly found myself overwhelmed with a sense of loss, pain and grief so great I could not contain the tears.

Today is Thanksgiving.  Today is a day for Thankfulness.  Today is a day of forgiveness and love, family and comfort. Well, it’s supposed to be.

So today I am not going to punish myself. Today I am not going to punish mom. Today I am going to allow myself a moment to miss her, grieve her, love her.  Today is a day to remember the good things about my mom. The loving, caring, nurturing side of mom.  The woman that made the best dressing on earth.  The mother that made the entire Thanksgiving dinner, from scratch, by herself. Worked tirelessly to clean, cook and clean again, so we could see how much she loved us.  The woman who would orchestrate the filling and giving of food baskets that the church group took out each Thanksgiving weekend.  The woman that would sit down and play a game of Wahoo even if she was exhausted from cooking all day.  The woman who loved me, loved me better than anyone else in the family.  My mom.  I miss my mom.

No, I am not in denial. I do remember the many, many, many Thanksgivings that ended with me in tears, mom yelling, kids melting down, guilt laden accusation, squabbles, silences, chilly looks… feeling guilty for leaving daddy behind to suffer alone with her….

But I also remember the love.  I have to remember the love.  I HAVE TO REMEMBER THE LOVE.  It’s hard to explain the two sides to my grief.  The two sides to  my memories.  I am a literal mask of one side happy, one side sad… a drama mask of pain…

imagesHow in the world am I going to sit with my family at the dinner table and act normal?  I have got to start stuffing these feelings back down or I am not going to make it till tonight!  I can’t drown right now.  I have things to do, people to take care of… I can’t drown… I Can’t Drown!!

Why can’t I write a decent post on how much I love MOM?? Why can’t I sit and think of just the good and not be flooded with hurt and pain? ANGER?!?!

This is not the way this was supposed to go.  This was not the words I was supposed to say.

This is not a reprieve.  This is torture.  This is just me…  This is just how life will be for a while, I suppose.

The walking wounded… The “Poor little Robyn” that precedes me and follows me everywhere I go…

I don’t want to become a repellant.  I don’t want people to see me coming and start running the other way, running in fear that I will jabber like the Mad Hatter… crazy maniacal laughter, crazy rambling thoughts of mom… both good and bad.. all mixed into the pot that is my damaged brain… like a bad, goopy mess.

So today, I will fix the chink in my armor.  Glue it back with crazy glue, and I will function… Cause that’s all I can do, right?  That’s all I can do.

Bless you, my friends.

 

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You know something is very, very wrong… when you have to force your foot onto the brake of your car…. rather than plow head first into a “Dead End” on a dirt road.

I sat there for probably 10 minutes… dirt catching up with my car and flying on passed into that big black and yellow sign. I cried, screamed, hit the steering wheel… chastised myself for being such a coward. Told myself I wasn’t even good at killing myself.. I am a complete failure at being a failure. I probably wasn’t even going fast enough.. I would have just damaged my car and never have hurt myself.

Such a loser at being a failure.

I am a mess. I am  a complete book of undiagnosed psychological disorders. I would be a case study for at least a small junior college psychology class.
Depression, Grief, Bi-Polar, Anxiety, Suicidal, Co-Dependant Survivor, Sex Addict, Control Freak, Insomnia, PTSD, Abuse Survivor, Shop Lifter, Liar….
And probably some schizophrenia… in there to.

I don’t know who I am without my mom here to tell me.  I don’t know who I am without that person here to affirm my place. To validate my day-to-day existence. Who AM I??? Who AM I???

She has been gone a month now, and this feeling of “Ok, its been nice… but I’m ready for you to come back now” is overwhelming! I’m ready for her to return from her long trip so she can tell me that I did a good job… that everything will be ok now, that it will all go back to normal, test over.. I, at least, did a fair job… show me the areas that i need to improve. Show me how she would have done things differently, better, how I can learn from this…

I am scared I am going to return back to old ways. Everytime I pulled away from mom… I went spiralling out of control. I became this dirty, horrible, ugly person that did bad, ugly things. I stole things, married a jerk, lied, cheated, drank, had sex with random strangers… all to fill that void that was left after having mom say she was “disappointed in me” after we had a fight or argument… After she found out something bad about me… I always filled that void..
Now I can’t. NOW I CAN”T….

I have others to think of. I can’t drink, it bothers my son; I can’t have random sex, that would kill my sweet boyfriend; I can’t steal… I would go to jail… I can’t talk to anyone… or they will all know… they will all know… they will ALL know…
I have kept things inside and hidden for so long. I have always hidden who I am, from mom. I have ALWAYS been her “sweet baby” Her baby… HER BABY… nobody elses… HERS
 She OWNED me.. she pruned me, shaped me… gave birth to me to be HER child, her baby.. her perfect child… and I fell right in step beside her. Everytime I pulled away as a child I was spanked unmercifully with a belt.. everytime I argued with her… everytime I stepped out of line just for a second I was spanked and slapped and hit and told how bad I was… how I would mind her… Mind her, Mind her… MIND HER…

I minded her for 39 years.
 I was a good little girl. I did what I was told, I let her control every little thing in my life… i lied to her over stupid things.. just because I knew she would not like them.. I Lied, I Lied.. I am good at lying.. I am the best. Now I lie to everyone about how I am…
“I’m fine”, “I’m ok”, “oh, you know.. it’s hard, I miss her, but she’s in a better place now”….

Fuck that!!! I am PISSED!
 How dare she micro manage me, guilt trip me, control me, force me, teach me, preen me, build me up, knock me down, belittle me, control me, control me, CONTROL my EVERY MOVE… and then just LEAVE me?!?!?! How dare she do that to me?!?! How dare she leave me to flounder and drown? How dare she teach me to only swim with her help and then take away my life preserver?!?!

HOW DARE SHE???

I need counseling, I know I need help. I worry that opening up that door and telling everything to a complete  stranger will start me back on that self soothing road… that’s where I learned to steal, thats where I started to spin out of control with drinking, how I learned to go to the bar at 4:30 on a Wednesday afternoon and there was always a horny business man ready for a romp in the parking lot. Hot, stinky breath whispering “Who’s your daddy?” “what a beautiful little girl you are”, stupid Mother Fuckers never  realized that if I was just 1/10th less human I would have killed him at the exact moment he came… But I only smile sweetly and tell him my fake name and I will see him next week. Never to return…

How do i go back to the point of being as raw as hamburger meat… a walking, bleeding, wound for a whole week, while someone the same age as me with only 20 more college hours than me, discusses this messed up client at cocktail parties and in bed with her husband… How do I do that?!?! it’s not judgement… it’s a good story… but how do i know that someone else is out there judging my mom? Me?? My mom was a good lady, she did lots of things for other people in the community… But the mom I saw at home was so different, I always had to remind myself how wonderful she was.. If I start tearing her apart in counseling.. will that mean I am no longer a good daughter? Her “Sweet Baby?”

The Dead End sign was staring back at me. I could turn left and go away from my kids and life.
I could turn Right and head back towards everyone who loves and needs me.

Or I could back my car up, and try it again….

I chose Right…. I think.

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